Colorado teen stricken with rare disease seeks donor

6:12 PM, Oct 26, 2013   |    comments
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DOUGLAS COUNTY - Lukas Larsson would prefer to be known as any high school junior. He loves being at Rock Canyon High School with his friends. Lukas loves soccer and skiing. He is 16 and excited about the prospects of driving.

There is something that sets Lukas apart from almost every other student in the world. It is the very thing that has his family fighting to help him.

"When you see your child hurting you have to do anything you can do," his mom, Dena Larsson, said.

He recently got diagnosed with a very rare blood disease, pediatric myelofibrosis. There have only been 50 documented cases worldwide, ever. The only cure is a bone marrow transplant. The most recent search for a match turned up negative even though there are 12 million members in the national bone marrow donor registry.

"That was a very emotional phone call," Dena Larsson said.

She says now they are trying to get the word out to increase the number of people who are on the registry. That will help the odds for anyone needing a transplant.

The doctors at Children's Hospital in Aurora are continuing to search for a donor in the international registry.

Lukas has an identical twin, Oliver. He could be the perfect match, but there is no knowledge regarding this disease in identical twins. The doctors at Children's are reluctant to use Oliver, because if it would be genetic, Lukas could end up with the fibrosis again after the transplant.

Lukas is able to go to school but is not able to participate in the two sports that he loves: soccer and skiing. He needs blood transfusions about every two weeks. Lukas has such a positive attitude and he is loved by so many people.

The family is hosting a bone marrow donor drive at Dazbog in Castle Pines North - 7298 Lagae Rd - on Saturday October 26 between 9 a.m. and 1 p.m. Please help spread the word that we need people between 18 and 44 to register as bone marrow donors. The test is a simple cheek swab.

(KUSA-TV © 2013 Multimedia Holdings Corporation)

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